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Thursday, 13 August 2009

Sunday, 19 April 2009

  • What do YOU do?

    This morning we went out to breakfast....
    Just the local Denny's
    As we arrive we notice a bit of a scene. 
    Mom and Dad are being screamed at by their son...about 11 or 12..as the scene goes on, it is rather obvious that the son is most likely autistic and in the middle of a meltdown.  And not a small child.

    Clearly, this is not terribly unusual...as Dad is handling it like a veteran. Kid gets in the car, then out, screams some more then bolts....he actually bolted twice...the last time he went down and paced on the sidewalk by the busy street barefoot.  As dad tried to talk him back to the car.

    Do you ask Dad if he needs any help?  Do you ignore it?  What is the proper thing to do? 

    I know you don't do what one lady did....and that is call the cops....there was no reason for that....and being Irvine...you dont get one police officer...you get 3 cars....(DH thought they would earn 4)...there was no abuse, no man handling...clearly they were not kidnapping him....just trying to diffuse a meltdown.

    When the cops arrived, they already had corraled the boy back to the car...and into the back seat...

    They take dad away from the car, ask mom to step back and then try to talk to the boy, which results in a 2nd door ding to the car next to them....

    At that point, we did offer mom a drink, did she need water, ice tea anything? 

    So they finish talking to the kid and walk away...what do you think the boy does?  He got back out of the car....by now he is calmer and can easily be talked back into the car.  The officers help them leave a note on the door dinged car (despite the fact the 2nd ding was done by the officer trying to help his partner talk to the boy) and they drove off to continue their journey....or return home.

    But what would you have done?  Would you have offerred the dad some assistance?  Or do you just ignore it?

Thursday, 26 March 2009

Wednesday, 25 February 2009

  • Currently
    Invasion of Privacy
    By Perri O'Shaughnessy
    see related

    E.R.

    I used to be a huge fan of this show but, I stopped watching when almost every episode carried some political or moral message.  I also was bummed about the constant killing off of docs I was really starting to like.  (I totally missed Dr Pratts killing....)

    Anyhow....

    On March 26, they will be airing an episode written specifically for Camp Del Corazon (www.campdelcorazon.org) and I would venture to guess Tom Arnold had a big hand in it.  Tom Arnold is playing a doc in the episode and has been a huge supporter of Camp Del Corazon.  He attends at least one day in every session of camp. The story line is about a kid with a heart defect and his struggles.  I believe it is being played by the brother from iCarly.  The following is the description from the Camp website:

    "The segment will sensitively portray the unique relationships and heartfelt stories of the courageous children who are growing up while living with the birth defect known as heart disease. Watch how these dedicated campers battle with their heart disease and build emotional bonds with one another that helps transform their futures. "

    Camp Del Corazon was asked to supply many of the extras so, yesterday Ivan and Rebekah spent the entire day on the Warner Brothers lot.  Some of her friends have a longer commitment...which will surely mean more face time in the episode...some were even asked to bring sleeping bags...so clearly alot of this focuses on the camp.  Rebekah was asked to dance.  Ivan says if he hears that song "I feel good" one more time he might go crazy.  They were reenacting the dances at camp.  Rebekah was asked to bring her camp shirt but, for some reason never asked to put it on.

    The awarenss to CHDs that this can bring is huge in my opinion.  Not only did these actors work with these kids, but now everyone who watches ER will hear more about them and see the many "normal" kids that CHDs affect.

    I wonder if there will be camp facts at the end of the episode?  That would be kinda cool.  And more in your face....There are at least 7 heart camps I can think of ...and prob more (there are 2 in California!).  www.tchin.org has a pretty good list on it. Many of these camps have multiple sessions and are staffed by the adults with heart defects.  Just the sheer amount of kids who attend these would be a heck of an eye opener to many people who dont realize that that 1 out of every 100 people has a Heart Defect.

    So dont forget to watch ER on the 26th of March...Rebekah has light blue jeans, a flowered shirt, glasses, short blonde hair and is wearing a lei in the scene....and prob drooling over John Stamos as I understand it....She was pulled out at one point for something special...her and two other kids....not sure what as Ivan saw no difference in how they treated her on the set.

     

    Funny side note:  We have a friend who we see maybe once or twice a year.  He works for Warner brothers doing sound and set design (I think).  We just happened to see him for his birthday on Saturday.  When we told him, he said "I just finished building that set Friday."  Ivan did get to see him twice during the day but unfortunately, he could not stick around after work because he had a prior commitment.

Sunday, 08 February 2009

  • Some CHD facts for you

    I stole this from a friend....but I think it is important to read....she titled it soap box....I wont go so far...I just want you to know....
    My soapbox is more directed at the AHA.....someday I might ramble about it.
    I know the person that started the CHD awareness Day....I spent many years working hard to promote it...only to find the AHA had more money and more lobby power...and could never get a president to declare it...Got the Governor (not the governator...go figure he has a heart defect) and the mayor of Irvine and quite frankly, became jaded and have focused my efforts elsewhere...

    Over the years, I have met many people who have had siblings with CHDs, some have passed away and even then they had no idea how common they are.
    ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

    With this being CHD Awareness Week (& the 14th is CHD Awareness Day) I am going to take a moment and stand on my soap box, please bear with me here.

    Most all know that February is National Heart Month. We are all familiar with wear Red Dress Day, we are all familiar of the importance of understanding adult and youth acquired heart disease. It is a well known fact that heart disease is the #1 killer among women. Because everyone relates February with Valentine's Day and love, chocolate candy hearts, and the color red it only makes sense February would be chosen as National Heart Month. But if you were to go ask the average person on the street if they ever heard of Congenital Heart Defects, I am sure your response would be quite different from those about acquired heart disease.

    By no means do we want to down play the importance of acquired heart disease and the need for prevention and intervention. But we do need to make aware the need for more research and awareness to those who are BORN with Congenital Heart Defects. It was not lifestyle or age that brought on these defects, and there was no way to stop it from happening.

    To the parents who have a child born with a heart defect it is mind blowing how little awareness there is for the #1 Most Common Birth Defect. There has, fortunately, been a greater amount of funding going into CHD research, however, there is still a much greater need for more.

    Please help join in the Awareness this week and pass this on.

    1. Congenital Heart Defect (CHD) is a defect of the heart present at birth.

    2. CHD's are the #1 most common birth defect, affecting 1 in every 100 babies born.

    3. CHD's are the #1 most common cause of infant death related to birth defects within the first year of life.

    4. There are at least 35 different known Congential Heart Defects.

    5. 1 in 10 born with a CHD will have a fatal defect.

    6. There is no known cause for CHD's, however, genetics and environmental factors can play a role in the defects. Scientist have been able to discover over 100 mutations that are directly linked to the heart.

    7. There is no known cure or prevention for CHD's. Most born with heart defects will require some form of palliative surgical intervention.

    8. Through research and medical advancements the mortality rate after surgery has significantly decreased in the past 20-30 years. On average it is about 5% compared to the 30% it was.

    9. There are an estimated 1 - 1.2 million living with a CHD in the US.

    10. Nearly twice as many children die each year from CHD's, than from all forms of childhood cancers combined.

    Spread the word and wear your Red & Blue on Feb. 14th!

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